In this episode, we talk about genomic data ownership and privacy ethics with David Koepsell, lawyer, author, and philosopher. http://davidkoepsell.com/ Check out the Encrypgen Market Demo - https://marketdemo.encrypgen.info/ Show Notes • Introduction of David’s background • Brief journey into blockchain • Patenting genes and ownership of personal data • Origins of Encrypgen - value proposition to upload individual genetic information securely on a research marketplace • Multichain, used by Encypgen, is built specifically for permissioned blockchain and satisfies the requirements of GDPR • Importance of Individual Metadata to make Genetic information valuable • Search capability of the genetic data and metadata • Value of genotyping and sequencing • The cost of sequencing one human genome has gone down from over $100M in 2001 to under $1000 today. • Challenging ICO Offering experience • How will Encypgen generate revenue? • Genomic Data Markeplace • How will the value and price of a person’s genetic change over time? • 23andme surveys and the collection of phenotypic data • Research Impact of the study of Epigenetics • Data Validation and accuracy • We will need multiple generations of genetic data to bring us tons of new insights about humans and health. • Genes are not your destiny • Ethical considerations • Breaking Bad and Philosophy - the book • Community building and importance of community support • David’s Upcoming event dates and locations- (https://www.healthfurther.com/ Nashvile, TN Aug 28-29), (https://www.eventbrite.com/e/the-exponential-healthcare-conference-tickets-47599097181 Newport, CA Oct 10) GINA Act - https://www.eeoc.gov/laws/statutes/gina.cfm News Corner - A subsidiary of Pornhub called Tube8 has entered into a partnership with Vice Industry Token. https://thenextweb.com/hardfork/2018/08/17/pornhub-tube8-blockchain-cryptocurrency/
